Events Taken Place
Associate Parliamentary Limb Loss Group Meeting
April 2008
This
Annual General Meeting of the Associate Parliamentary Limb Loss Group.
Click for Minutes.
Associate Parliamentary Limb Loss Group Meeting
December 2007
This joint meeting by the Associate Parliamentary Limb Loss Group and the All-Party Landmines Eradication Group.
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Associate Parliamentary Limb Loss Group Meeting
November 2007
This joint conference of the Associate Parliamentary Limb Loss Group and the All-Party Group for Diabetes was fully attended, and highlighted and discussed issues including commissioning and prevention.
Conclusions included the need for increased specialisation of service provision in a more joined up way. Also that commissioners/decision makers needed to consult more before further modernisation and or changes to service provision.It was clear that further and improved CONSULTATION with both the PATIENT and the HEALTHCARE PROFESSIONALS actually providing the service was needed.
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Associate Parliamentary Limb Loss Group Meeting
October 2007
This joint meeting by the Associate Parliamentary Limb Loss Group and the All-Party Group for Diabetes.
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Associate Parliamentary Limb Loss Group
& NHS Supply Chain Conference
April 2007
This
joint meeting by the Associate Parliamentary Limb Loss Group & the
newly formed NHS Supply Chain gave key stakeholders the opportunity to
understand the opportunities and challenges that lay ahead at the same
time having the opportunity to raise their concerns and aspirations.
December 2006
The third
meeting of the Associate Parliamentary Limb Loss Group. This conference
was used to promote GET MOBILE-STAY MOBILE.
2006 NATIONAL CONFERENCE
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Paul Clark MP and Lord McColl
say with the APLLG
“GET MOBILE – STAY MOBILE”
Paul Clark MP for Gillingham, personally hosted the wide-ranging GET MOBILE - STAY MOBILE December Portcullis Conference of the Associate Parliamentary Limb Loss Group, with the theme of GET MOBILE - STAY MOBILE, and concerned as much with the avoidance of Limb Loss as with Independence after Limb Loss. Speaking from first hand knowledge of the excellent Gillingham Services Centre in his constituency, Paul praised the excellent and caring services of all the health professionals at such Centres throughout the UK, where staff were coping with change and reaching out as far as possible despite limited resources.
Group Co-Chair Lord McColl of Dulwich, welcomed all present with the good news, warmly applauded, of sponsorship of international bursaries by the Douglas Bader Foundation and the Limbless Association, before introducing and handing over to their distinguished Conference Chairman and Rehabilitation Consultant Rajiv Hanspal.
Rajiv, emphasising the steadily widening outreach of the Group and the Conference, read out a letter of support from Richard Howitt MEP, President of the European Union All Party Disability Group.
The Group received the following goodwill message from Doug Naysmith MP for Bristol North West, who had hosted the parliamentary meeting where the formation of the Group was announced; “The Associate Parliamentary Limb Loss Group plays a vital role in highlighting the needs and concerns of people of all ages with mobility needs. I have had the opportunity to visit first hand the outstanding rehabilitation services being provided for people with limb loss at Southmead Hospital. The North Bristol Musculo-Skeletal Directorate and the support provided by the Group provide an invaluable service both within my constituency and beyond.
I also firmly support the Early Day Motion tabled by Dr Roger Berry MP for Kingswood, which raises concerns over the unmet mobility needs of people of all ages.
The work carried out by charities such as MOTABILITY and WHIZZ-KIDZ has made a real difference to the lives of people with limb loss and I would welcome further support from the Government in regard to the provision of powered wheelchair services as part of the services currently provided by the NHS”.
Joining in the welcome, Limbless Association Chair Zafar Khan described the work of the Association, and thanked his staff, for the excellent administrative arrangements they had made for the Conference.
The speakers and topics of the day, in speaker order, were:
John Murray from the Specialised Healthcare Alliance
John Murray has twenty-five years' experience in UK/EU government affairs and media relations working in healthcare, food, financial services and shipping. He has been Director of the Specialised Healthcare Alliance since January 2004. Membership has since risen from twenty to forty patients organisations, supported by seven corporate members. More importantly, DH policy on the commissioning of specialised services has been overhauled with implementation the next challenge.
Dr Richard Dale for the Commercial Directorate Department of Health
Richard has been Medical Director of the Commercial Directorate (CD), Department of Health since March of this year. He is responsible for leading and directing the clinical teams across the CD, providing clinical advice for the Central Clinical Procurement Programme and Central Contracts Management Unit as well as defining and making recommendations on operational clinical requirements.
Prior to joining the DH, Richard was Director of Clinical Service Development and Consultant Surgeon at the Benenden Hospital. Richard has strong professional and management experience, as well as research experience. His previous positions include Assistant Medical Director at the Defence Secondary Care Agency and Consultant General Surgeon, Defence Medical Services where he was Professor of Clinical Surgery. Richard was also Consultant General Surgeon at the Royal Hospital Haslar.
IMPROVING CARE OUTSIDE HOSPITAL
Amanda Hutchinson for the Healthcare Commission
Amanda Hutchinson is Head of Long Term Conditions and Older People Strategy at the Healthcare Commission. The role includes ensuring that the Healthcare Commission’s system for assessing services is being used to maximise improvement in care, treatment and outcomes for People with Long Term conditions and for Older People. Amanda has a background in health services research and policy analysis. She has worked for the Healthcare Commission for four years, initially conducting a review of progress with implementing the NSF for Coronary Heart Disease. Before that she worked in a variety of roles at the British Medical Association.
TURNING THE DIABETES CARE CORNER
Maria Mousley for the National Diabetes Support Team
Maria Mousley is the Consultant Podiatrist at Northampton Primary Care Trust. She is involved in consultant led ward rounds, multi-disciplinary high-risk foot clinics and provision of outpatient diabetic foot-care. Her special interest is early identification of the foot at risk with appropriate referral pathways, and tissue viability. Maria is a distinguished member of the National Diabetes Support Team..
Dr Joan Hester for the British Pain Society
Dr Joan Hester has worked in the NHS for 35years, and was a Consultant in anaesthesia and pain management at Eastbourne, where she was also Medical director, until coming to London 3 years ago. Joan now works as Consultant in Pain Medicine at King’s College Hospital in London and is the elected President of the British Pain Society. She has a national and international reputation for her work in promoting understanding and education in pain management. Joan believes in the voice of patient groups and is Honorary President of a charity called Action-on-Pain which aims to educate the public in how to manage pain and how to gain access to professional help. She also has a life long interest in cancer pain and palliative care and work at St Christopher’s Hospice in London.
GETTING MOBILE WITH AN EDM - PART A
Joe Hennessy for Motability Operations
Joe comes to us with many years of experience in the disability world. He was the prime mover in the creation of the MOBILISE organisation for disabled drivers, and among numerous activities Chairs the Joint Committee on Mobility for Disabled People. He was a founder member of Motability
GETTING MOBILE WITH AN EDM – PART B
Ruth Owen for Whizz-Kidz
Ruth Owen joined Whizz-Kidz as Chief Executive in 2004 after running her own successful IT company for ten years. Previously she worked in the technology sector.
As a wheelchair user since the age of seven, Ruth has a unique insight into the essential need for all young people to be independently mobile. Ruth is also a trustee of Barnardo’s.
INTERNATIONAL DEVELOPMENTS – PART A
Dr Robin Luff for the International Society for Prosthetics and Orthotics
Robin is Consultant in Rehabilitation to the King’s College Hospital NHS Trust, and Chairman of the UK National Member Society of the International Society for Prosthetics and Orthotics.
INTERNATIONAL DEVELOPMENTS – PART B
Sarah Hodge for POWER International
Sarah is the CEO of POWER International, a UK charity that specializes in working with and for disabled people in developing countries, currently Mozambique, Laos and Zambia. Sarah has had 12 years’ experience of a range of disability in development issues, from the provision of mobility devices to promoting a rights-based culture for disabled people and their representative organisations. POWER’s overseas offices are staffed almost entirely by indigenous people, some of whom are disabled.
INTERNATIONAL DEVELOPMENTS – PART C
Sue Banton for steps Charity Worldwide
Founder & Director of steps, an international charity for people with walking difficulties that works in the UK and supports parent & healthcare initiatives throughout the world. Her son was born 27 years ago with clubfoot and for the last six years steps has been working with an International community to raise awareness of the impact this condition has in developing countries.
Contributions from Delegates included David Bickers Chair of the Douglas Bader Foundation who said “My main concern today is hearing the number if excellent projects and initiatives that would help in this area of disability, which are not happening due to the lack of financial support from the official sources that we have to approach. As a charity in this area for 24 years we have NEVER received Government support despite filling in many applications during that time and here are others also having their applications unsupported.
The limb loss affected individuals I have met over the years are wonderfully courageous people who are determined to overcome their situation and lead a normal life – perhaps this is their downfall! Bt overcoming and leading a normal life they could be perceived as having no problems and being “all right” compared to the many other illnesses, diseases and causes of other medical problems. This is NOT the case!"
Building on the the Conference, Group Advisor and double amputee Sam Gallop CBE succinctly answers the question Where do we go from here?
"We must implement the United Nations Convention on the Rights of Disabled Persons. We must collaboratively move by Models of Sustainable Innovation beyond the SOCIAL Model to the ACTION Model of Disability and MAKE RIGHTS REAL."
Associate Parliamentary Limb Loss Group Meeting
19 July 2006
The second meeting of the Associate Parliamentary Limb Loss Group.
Associate Parliamentary Limb Loss Group Inauguration
6 February 2006
The inauguration of the newly formed Associate Parliamentary Limb Loss Group.
Launch of Associate Parliamentary Limb Loss Group
November 2005
The launch of the parliamentary limb loss group for the promotion with Whitehall of the provision of prosthetic and other rehabilitation services to all person suffering limb loss in the UK and Internationally.
2005 NATIONAL CONFERENCE
On 30th November, at a conference of more than 100 delegates in Portcullis House, Peers and MPs and the NHS Purchasing and Supplies Agency signed up to the new 6Cs national and international Users Charter.
Sian James MP Caroline Spelman MP Lord McColl Sadiq Khan MP
Baroness Lockwood Paul Clark MP Doug Naysmith MP Anne Milton MP
Sir George Young MP Justine Greening MP Angela Watkinson MP
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Conscious of the ever increasing numbers of persons of all ages suffering limb loss, both in the United Kingdom and worldwide, MPs and Peers responded swiftly and caringly to the suggestion that there should be an empowering Associate Parliamentary Limb Loss Group 'APLLG'.
At the inaugural meeting on 6th February 2006 Lord McColl of Dulwich and Roger Berry MP were elected as Co-Chairs supported by the election of Justine Greening MP as Secretary. A Schedule of Parliamentary Members and Schedule of Associate Members is available by using these
REHABILITATION AFTER LIMBLOSS
"Where is all the money going?"
'Rehabilitation will stay a major part of what needs to be done'. This was the encouraging message from Duncan Eaton, Chief Executive of the NHS Purchasing and Supplies Agency, at the 30 November Westminster Conference to promote within Parliament and Whitehall REHABILITATION AFTER LIMBLOSS nationally and internationally. Duncan was responding to the question from host Dr Doug Naysmith MP, 'Where is all the money going. Rehabilitation needs more resources'.
Among many encouraging developments reviewed by Duncan was the PASA Centre for Evidence Based Purchasing which will underpin purchasing decisions by providing objective evidence to support the uptake of useful, safe, innovative products and related procedures in health and social care.
The Conference was chaired by Dr Rajiv Hanspal, and delegates were welcomed by Zafar Khan who received a donation of £10,000 from the HELPING HANDS charity in support of overseas work. Henry Lumley from the North Bristol NHS Trust illuminated the Fast Track to Assistive Technologies. Dr Robin Luff for ISPO and Simon Webster for BHTA described opportunities and achievements in national and international outreach. Amputees Kiera Roche, Colin Hamilton and Ray Edwards, shared constructively and vividly their transition from Limbloss to Limbgain.
Lord McColl and Sam Gallop, at the close, left everyone in no doubt that there would be a vigorous Way Ahead, in collaboration with the new Associate Parliamentary Limb Loss Group, and in support of the Limb Loss Charter launched at the Conference and signed up to by Peers and Members of Parliament.
There is no doubt as APLLG Advisor Sam Gallop puts it that "APLLG and the 6Cs are going to be magic initials in transforming the limb loss world".
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